Friday, March 16, 2012

Friday, March 16, 2012

Daniel had an amazing morning, more laughing and we could communicate because he simply won’t shut up!  Love it! His patience prevails while I will get part of a word, like “key”, he will shake his head yes, and continue to “say the word”, I finally guess Reiki, and he smiles widely shaking his head yes! 

I really should have written this last night because so many good things occurred but I woke up this morning feeling like a Mac truck had run me over!  The weight of the past week seem to be landing on me all at once.

The air leak in his lungs seems to have stopped or at least slowed down; the lung seems to have inflated some.  His breathing was very good, they could lower the pressure on the vent and allow him to take some breaths on his own (meaning the machine didn’t do all of the work).  His stomach appears to be waking up a bit too.

He was exhausted by all of our activity in the morning, but as he tried to sleep he was interrupted a thousand times by one doctor or another.  Frustrating, I had the harpist come to play so people would stay out but it didn’t really work, I almost feel asleep!

The respiratory therapist allowed Daniel to say “Hi, Mom” through his trach.  It sounds so weird because he has to speak on the exhale, but it is the most beautiful words I have heard in the past week.  I’ll take every single word that he can emit. 

Daniel is so positive through all of this.  He doesn’t seem to mind being trached; I guess if you can’t breathe you’ll do anything.   He’s fully aware of everything he has had done to him and nothing seems to be bothering him emotionally.  Such a source of strength! 

Inch by inch, day by day, we will conquer all of these obstacles. 

Love, Carol